She shocked doctors by living to 41 with rare ‘butterfly’ disorder. She also picked up a celebrity friend along the way

EXCLUSIVE: ‘We sat down beside each other, and we just felt like we’d known each other 100 years,’ Emma Fogarty says of meeting Colin Farrell. Sheila Flynn reports how Fogarty’s rare condition helped her forge a bond with a star - and defy the odds doctors gave her.