Co Tyrone boy with very rare condition was not expected to survive more than a few days 'but he had no intention of leaving us' | Collector

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Co Tyrone boy with very rare condition was not expected to survive more than a few days 'but he had no intention of leaving us'

Northern Ireland World

Co Tyrone boy with very rare condition was not expected to survive more than a few days 'but he had no intention of leaving us'

A Co Tyrone family has launched a campaign to help raise funds for their four year old son who suffers from a very rare congenital X linked myotubular myopathy.

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